Research in Community and Public Health Nursing

Original Articles

The Relation among Uncertainty, Social Support, Care Burden of Mothers having Children with Developmental Disabilities: Kyoung Eun Jeong, Min Hyun Suk; Res Community Public Health Nurs. 2023;34(2):117-126. Published online June 30, 2023; DOI: https://doi.org/10.12799/rcphn.2022.00346

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Purpose
This descriptive correlation study aimed to confirm the relation among uncertainty, social support, care burden of mothers having children with developmental disabilities.
Methods
The participants were 111 mothers having children with autistic spectrum disorder or intellectual disability. The collected data were analyzed by descriptive statistics, t-test, ANOVA, Pearson’s correlation coefficient and multiple regression using IBM SPSS 23.0 in the study.
Results
Uncertainty and social support were significantly correlated to caregiver burden. As a result of multiple regression analysis, the factors affecting caregiver burden were children’s age, the expense for caring, the period suspected child disabilities, and uncertainty. These factors accounted for 40.8% of caregiver burden.
Conclusion
In order to reduce the burden of caring for mothers with children with developmental disabilities, it is necessary to establish a system that can detect children with developmental disabilities early and to develop and provide an integrated guide suitable for the growth and development stage of children with developmental disabilities.

Citations

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Spousal support, parent–nurse partnership and caregiver burden among parents of children with chronic diseases: A cross‐sectional study
Jihye Kim, Heemin Chae, Yoonjung Kim
Journal of Clinical Nursing.2024; 33(7): 2649. CrossRef

The Burden Experience of Family Caregiver of Older Adults with Chronic Illness: Nova Yustisia, Titin Aprilatutini, Tuti Anggriani Utama, Mahmasoni Masdar; Res Community Public Health Nurs. 2023;34(2):85-95. Published online June 30, 2023; DOI: https://doi.org/10.12799/rcphn.2022.00304

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Abstract PDF

Purpose
This study aims to find out further about the burden on families in undertaking caregiving for the elderly with chronic illnesses.
Methods
A qualitative study was developed using in-depth interviews with 12 family caregivers selected by purposive sampling in July 2022. The thematic analysis was then carried out using the Colaizzi method, and N-Vivo 12 Qualitative Data Analysis Software was used to assist with the content analysis.
Results
The result from the experience interview analysis of caregivers participating in this study were 54 codes which were categorized into thirteen categories. Then, they were derived into four themes, as follows: 1) Physical burden of the caregivers for the elderly with chronic illness, 2) Psychological burden of the caregivers for the elderly with chronic illness, 3) Obstacle of caregivers for the elderly with chronic illness, 4) The state of caregivers who perform caregiving for the elderly with chronic illness.
Conclusion
The experience of caregivers in undertaking caregiving for the elderly with chronic disease has many obstacles, such as physical, psychological, and economic burdens. Caregivers often find positive aspects of their experiences while caregiving for the elderly, although their burden also constantly increases. Health facilities should pay serious attention to family caregivers and facilitate programs that can help reduce the burden on family caregivers.

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Relationship between Care Burden and Health Anxiety in the Family Caregivers of the Older Adults with Alzheimer’s Disease
Mohammad Sadegh Sargolzaei, Daniyal Kohestani, Tahereh Alsadat Khoubbin Khoshnazar, Hossein Asghari Asl
Ageing International.2024; 49(2): 280. CrossRef

Factors Influencing the Burden Felt by Main Family Caregivers of Elderly Patients with Brain and Spinal Diseases: Hee Kyung Park, Kyung Min Park; J Korean Acad Community Health Nurs. 2011;22(4):389-398. Published online December 31, 2011; DOI: https://doi.org/10.12799/jkachn.2011.22.4.389

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Abstract PDF

PURPOSE
This study of this study was to identify factors influencing the burden of main family caregivers who take care of elderly patients with brain and spinal diseases.
METHODS
This was conducted as descriptive research and data were collected from 255 main family caregivers who were taking care of elderly patients with brain and spinal diseases from 4 hospitals in Daegu and Gyeongbuk Province. Stepwise-multiple regression was used to identify the influencing factors of burden felt.
RESULTS
As the score of burden felt by the main family, economic, social, physical, interdependent and emotional burdens were high in order. Factors influencing burden felt by main family care givers taking care of elderly patients with brain and spinal diseases were changed relation with patient after hospitalization, daily life ability, marital status, education and family caregiver's personality (explanatory power of 24.6%). Family caregivers felt a heavier burden when their relation with the patient was changed negatively or when the patient's activity of daily living was low.
CONCLUSION
Based on these results, we need to develop coping measures and interventional programs for reducing the burden felt by the main family caregivers of elderly patients with brain and spinal diseases.

Citations

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The Effect of a Social Support Program on Family Caregivers' Role Strain in Elderly Long-term Home Care
Mei Hae Oh, Kyung Min Park
Journal of Korean Academy of Community Health Nursing.2014; 25(2): 137. CrossRef
The Care Giving Burden of Primary Caregiver based on Nursing Needs of Long-term Care lnsurance Grade
Mi-Kyoung Kim, Dahye Park, Okhee Ahn
Journal of the Korea Convergence Society.2014; 5(3): 7. CrossRef

Relationship between Family Burden, Family Support Depression, and Satisfaction of the Elderly Caregiver: Joo Young Lee, Young Ae Kim; J Korean Acad Community Health Nurs. 2009;20(1):41-48. Published online March 31, 2009

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Abstract PDF: PURPOSE
This study was aimed to explain the relationship of family burden, family support, depression and satisfaction among caregivers of the elderly.
METHODS
The study population were 126 caregivers of 5 elderly residing in institutionalized nursing homes in Seoul and Kyunggi. The research tool of this study was a structured questionnaire on family burden, family support, depression and satisfaction. The data were collected from March 13 to April 30, 2008, and analyzed by Cronbach's alpha, descriptive statistics, t-test, ANOVA and Pearson's correlation coefficient and multiple regression by using the SPSS/WIN 14.0 program.
RESULTS
The major findings of this study were as follows: a significant positive correlation between family support and depression (r=.65, p=.001) was found. A significant positive correlation between family support and satisfaction (r=.68, p=.001) was perceived. Significant factors influencing Satisfaction were Family Support, which explained 38.2% of the variance of Satisfaction of Elderly Caregiver.
CONCLUSION
This study suggested that we should develop programs and policies to increase the satisfaction of caregivers for their family support. In conclusion, the study was done to give suggestions to improve caregiver satisfaction of the aged and to serve as a basis for policy strategies by examining the current conditions of the nursing facilities.

A Study on the Health Status, Burnout, and Burden of Primary Family Caregivers of the Elderly In-Patients: Kwuy Bun Kim, Jung Min Sung, Sohyune R Sok; J Korean Acad Community Health Nurs. 2008;19(2):216-225. Published online June 30, 2008

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Abstract PDF: PURPOSE
This study was to explore the level of health status, burnout, and burden of primary family caregivers of the elderly inpatients, and to identify the relations among the factors.
METHOD
The subjects were a total of 232 primary family caregivers of elderly in-patients at K and E Medical Center, and were surveyed from March 1 to April 10, 2007. Measures were a health status measuring tool based on CMI developed by Brodman et al. (1945), the burnout measuring tool developed by Pines et al. (1981), and the burden measuring tool revised by Jung, Soo-Jin (1998). Data were analyzed by SPSS-WIN 12.0.
RESULTS
Firstly, the mean of health status was 1.69, which means that they were mostly healthy, and the mean of burnout was 2.66, which means that they were a little burned out. The mean of burden was 2.71, which means that they were a little burdened. Second, there were high correlations between health status and burnout, between health status and burden, and between burnout and burden. Third, there were significant difference in health status and burnout according to sex and relationship, and in burden according to sex, education level and relationship.
CONCLUSIONS
Nurses need to consider the characteristics, health status, burnout, and burden of primary family caregivers.

Burden and Quality of Life in Caregivers of Patients with Rare and Incurable Disease: Kyung Ja Choi, Hee Chong Baek; J Korean Acad Community Health Nurs. 2006;17(3):364-375. Published online September 30, 2006

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Abstract PDF: No abstract available.

A Study on the Development of Self-help Program with Care Burden for Families with Demented Elderly Persons: Jung Soon Kim, Su Ill Lee, Ki Tae Kim, Nam Hee Park; J Korean Acad Community Health Nurs. 2005;16(3):260-269. Published online September 30, 2005

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Abstract PDF: PURPOSE
This study were to understand the caregiving situation of families with the demented elderly and to develop a self-help program for them.
METHODS
A self-help program was designed to increase caregivers' confidence and skills in problem solving. In addition, it was designed to provide information about the demented elderly. The self-help program of this study was composed of nine sessions.
RESULTS
Family caregivers of elderly patients with dementia obviously experience high level of stress. which often leads the caregivers to negative outcomes such as depression, interference with social activities and health difficulties. That is, caring is stressful for caregivers because the demands of the caregiving situation tend to overwhelm the caregivers' coping resources. Therefore, families with demented elderly persons need assistances in order to be relieved from their care burden.
CONCLUSION
The self-help program includes the understanding of dementia, the family caregiving experiences of the demented elderly persons, the time for self-care, the search for helping, the improving of interpersonal relations and communications.

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