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3 "Caregiver Burden"
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Original Articles
[English]
Factors associated with life satisfaction among family caregivers of persons living with dementia
Seonho Choi, Yeji Hwang, Eui Young Cho
Res Community Public Health Nurs. 2024;35(3):254-263.   Published online September 30, 2024
DOI: https://doi.org/10.12799/rcphn.2024.00612
  • 5,409 View
  • 85 Download
AbstractAbstract PDF
Purpose
Because family caregivers provide a considerable amount of daily care to persons living with dementia, they are at risk of experiencing poor life satisfaction. Therefore, this study aimed to examine factors associated with the life satisfaction of family caregivers of persons living with dementia.
Methods
Data were collected through surveys from family caregivers (N=183), and a multiple linear regression analysis was conducted to examine the factors associated with their life satisfaction.
Results
The final model indicated that perceiving support from intimate others as helpful (β=.22, p<.001) was associated with greater life satisfaction, whereas a negative relationship with the care recipients (β=−.15, p=.046) and greater psychological burden (β=−.40, p<.001) were associated with poorer life satisfaction (Adjusted R2=0.49, F=20.42, p<.001).
Conclusion
Public policy should focus on providing greater support to family caregivers. Furthermore, healthcare professionals should implement intervention programs for family caregivers that focus on lowering their psychological burden.
[Korean]
The Relation among Uncertainty, Social Support, Care Burden of Mothers having Children with Developmental Disabilities
Kyoung Eun Jeong, Min Hyun Suk
Res Community Public Health Nurs. 2023;34(2):117-126.   Published online June 30, 2023
DOI: https://doi.org/10.12799/rcphn.2022.00346
  • 7,092 View
  • 164 Download
  • 6 Citations
AbstractAbstract PDF
Purpose
This descriptive correlation study aimed to confirm the relation among uncertainty, social support, care burden of mothers having children with developmental disabilities.
Methods
The participants were 111 mothers having children with autistic spectrum disorder or intellectual disability. The collected data were analyzed by descriptive statistics, t-test, ANOVA, Pearson’s correlation coefficient and multiple regression using IBM SPSS 23.0 in the study.
Results
Uncertainty and social support were significantly correlated to caregiver burden. As a result of multiple regression analysis, the factors affecting caregiver burden were children’s age, the expense for caring, the period suspected child disabilities, and uncertainty. These factors accounted for 40.8% of caregiver burden.
Conclusion
In order to reduce the burden of caring for mothers with children with developmental disabilities, it is necessary to establish a system that can detect children with developmental disabilities early and to develop and provide an integrated guide suitable for the growth and development stage of children with developmental disabilities.

Citations

Citations to this article as recorded by  
  • Factors associated with uncertainty in parents of children with developmental disabilities: A scoping review
    Heejung Choi, GyeongAe Seomun, Jeongeun Song
    Disability and Health Journal.2026; 19(1): 101962.     CrossRef
  • The mediating role of social support in the effect of uncertainty intolerance on the burden of care in parents of children with special needs
    Havva Kaçan, Gamze Kaş Alay, Gülçin Gümüş Çaliş
    Journal of Pediatric Nursing.2026; 88: 569.     CrossRef
  • The effect of intolerance of uncertainty, sleep quality, and social support on caregiver burden in parents of children with chronic diseases: A cross-sectional study
    Furkan Doğaner, Raziye Celen
    Journal of Pediatric Nursing.2025; 81: e106.     CrossRef
  • Adaptation and validation of the Korean version of the parental perception of uncertainty scale (K-PPUS) in parents of children with developmental disabilities
    Heejung Choi, GyeongAe Seomun
    Journal of Pediatric Nursing.2025; 82: 47.     CrossRef
  • The effect of counseling services provided in rehabilitation centers on parents' caregiving burden and quality of life
    Mehmet Uçar, Rukuye Aylaz
    WORK: A Journal of Prevention, Assessment & Rehabilitation.2025; 81(2): 2763.     CrossRef
  • Spousal support, parent–nurse partnership and caregiver burden among parents of children with chronic diseases: A cross‐sectional study
    Jihye Kim, Heemin Chae, Yoonjung Kim
    Journal of Clinical Nursing.2024; 33(7): 2649.     CrossRef
[English]
The Burden Experience of Family Caregiver of Older Adults with Chronic Illness
Nova Yustisia, Titin Aprilatutini, Tuti Anggriani Utama, Mahmasoni Masdar
Res Community Public Health Nurs. 2023;34(2):85-95.   Published online June 30, 2023
DOI: https://doi.org/10.12799/rcphn.2022.00304
  • 28,569 View
  • 771 Download
  • 5 Citations
AbstractAbstract PDF
Purpose
This study aims to find out further about the burden on families in undertaking caregiving for the elderly with chronic illnesses.
Methods
A qualitative study was developed using in-depth interviews with 12 family caregivers selected by purposive sampling in July 2022. The thematic analysis was then carried out using the Colaizzi method, and N-Vivo 12 Qualitative Data Analysis Software was used to assist with the content analysis.
Results
The result from the experience interview analysis of caregivers participating in this study were 54 codes which were categorized into thirteen categories. Then, they were derived into four themes, as follows: 1) Physical burden of the caregivers for the elderly with chronic illness, 2) Psychological burden of the caregivers for the elderly with chronic illness, 3) Obstacle of caregivers for the elderly with chronic illness, 4) The state of caregivers who perform caregiving for the elderly with chronic illness.
Conclusion
The experience of caregivers in undertaking caregiving for the elderly with chronic disease has many obstacles, such as physical, psychological, and economic burdens. Caregivers often find positive aspects of their experiences while caregiving for the elderly, although their burden also constantly increases. Health facilities should pay serious attention to family caregivers and facilitate programs that can help reduce the burden on family caregivers.

Citations

Citations to this article as recorded by  
  • Mastering the Art of Caregiving: Instructional Approaches to Teaching Healthcare‐Related Procedural Skills to Informal Caregivers—An Integrative Review
    An Ling Siew, Esther Yin Hui Chew, Ee‐Yuee Chan, Elaine Kee Chen Siow
    Journal of Advanced Nursing.2026; 82(1): 272.     CrossRef
  • Navigating caregiving challenges: the interplay of health literacy and resilience in families of chronically ill older adults
    Ibrahim Alasqah, Mona Metwally El-Sayed, Ahmed Hashem El-Monshed, Mahmoud Abdelwahab Khedr, Manal Mohammed Hawash, Rahma Mohamed Abdelrahman, Mohamed Hussein Ramadan Atta, Shaimaa Mohamed Amin
    Frontiers in Public Health.2026;[Epub]     CrossRef
  • Enhancing Communication and Empathy Skills in Geriatric Care: Nurses' Reflections on Simulation‐Based Training for Patient Interaction and Education
    Sobhia Ahmed Abdel Kader Mohammed, Mostafa Shaban
    Journal of Clinical Nursing.2025;[Epub]     CrossRef
  • Spirituality Well-Being, Health Status, Nutritional Status and Their Relation to Illness Perception in Chronic Obstructive Pulmonary Disease
    Scholastica Fina Aryu Puspasari, Margaretha Kurniastuti, Kosen d'Aristo McGenggeng
    Jurnal Berita Ilmu Keperawatan.2025; 18(2): 193.     CrossRef
  • Relationship between Care Burden and Health Anxiety in the Family Caregivers of the Older Adults with Alzheimer’s Disease
    Mohammad Sadegh Sargolzaei, Daniyal Kohestani, Tahereh Alsadat Khoubbin Khoshnazar, Hossein Asghari Asl
    Ageing International.2024; 49(2): 280.     CrossRef

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