1Assistant Professor, Department of Community Nursing, Vocational Nursing, Faculty of Mathematics & Natural Science, Bengkulu University, Indonesia
2Assistant Professor, Department of Medical Surgical Nursing, Vocational Nursing, Faculty of Mathematics & Natural Science, Bengkulu University, Indonesia
3Instructor, Lotus Jaya Sejahtera Foundation, Indonesia
Copyright © 2023 Korean Academy of Community Health Nursing
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Conflict of interest
The authors declared no conflict of interest.
Funding
Faculty of Mathematics and Natural Science, Bengkulu University (Grant number: 1980/UN30.12/HK/2022).
Authors’ contributions
Nova, Yustisia contributed to conceptualization, data curation, data collection, formal analysis, funding acquisition, methodology, project administration, writing - original draft, review & editing, investigation, and resources. Titin, Aprilatutini contributed to data collection, writing- original draft, and data curation. Anggriani, Utama, Tuti contributed to supervision, validation, methodology, formal analysis, and writing-review & editing. Mahmasoni, Masdar contributed to formal analysis, software, and visualization.
Data availability
Please contact the corresponding author for data availability.
Interview Questions |
---|
- Please tell me about the current state of health of the elderly. |
- According to you, how much is the dependency of the elderly? Please explain! |
- What is your state of health since caring for the elderly? |
- Do you feel still capable of caregiving for your own elderly, or will you leave the responsibility to the other sibling? Explain why! |
- How do you feel while undertaking caregiving for the elderly? Are there feelings of stress, anger, fear, tension/discomfort? Can you explain? |
- Do you feel a loss of self-control while caring for/dealing with elderly illnesses? |
- Are you unsure about the care you have given the elderly? |
- What is your hope for the elderly? Is there a feeling of wanting to do anything for the health of the elderly? |
- Let’s talk about whether, since caring for the elderly, you feel that you do not have time to do other activities, such as free time for yourself, other families or friends? |
- Is there a feeling of shame and discomfort in making friends with others because there is an older person who is sick? |
- Can you explain, does taking care of the elderly interfere with relationships with other families? |
- How is the economic condition of your family since caring for the sick elderly? Is there an elderly's need that requires additional funds? |
Code | Elderly age (years) | Gender of the elderly | Diseases suffered by the elderly | Period of the illness | Caregivers’ age (years) | Caregivers’ education | Caregivers’ work | Relationship with the elderly |
---|---|---|---|---|---|---|---|---|
P1 | 66 | F | Stroke, paralysis from the waist down | 5 years 9 months | 68 | Undergraduate | Retiree | Husband |
P2 | 80 | F | Osteoporosis | 3 years 6 months | 88 | Senior Secondary | Retiree | Husband |
P3 | 87 | F | Hypertension, paralysis | 6 years | 52 | Senior Secondary | Housewife | Biological children |
P4 | 78 | F | DM, stroke | 6 months (lying down), 12 years sick | 37 | Senior Secondary | Entrepreneur | Biological children |
P5 | 69 | F | Hypertension, stroke | 5 years | 32 | Undergraduate | Self-employed | Biological children |
P6 | 60 | F | Stroke | 6 years | 32 | Senior Secondary | Housewife | Biological children |
P7 | 90 | M | Stroke | 3 years, 1-year total care | 32 | Undergraduate | Housewife | Daughter-in-law |
P8 | 66 | M | Stroke | 3 years | 63 | Elementary | Housewife | Wife |
P9 | 83 | F | Heart disease | 4 years | 56 | Diploma | Civil servant | Biological children |
P10 | 80 | F | Stroke | 3 years | 42 | Undergraduate | Civil servant | Biological children |
P11 | 62 | F | CKD, DM | 6 years, lying 4 months | 32 | Undergraduate | Housewife | Biological children |
P12 | 78 | F | Stroke | 6 years | 46 | Senior Secondary | - | Biological children |
Theme | Category |
---|---|
Caregiver Physical Burden in Caring for Elderly with Chronic Illness | - Activity Disturbances |
- Elderly Care | |
- Elderly Dependence | |
- Disease History | |
- Fatigue | |
The psychological burden of caregivers in caring for elderly people with chronic diseases | - Psychological Burden |
- Caregivers Hope | |
Barriers of caregivers in caring for elderly people with chronic illnesses | - Economic Barriers |
- Help Needed | |
- Lack of Family Involvement | |
- Time Constraint | |
The condition of caregivers who care for elderly people with chronic diseases | - The caregiver's economic situation |
- Roles and activities | |
- Caregiver Perceptions |
M = Male, F = Female
Foot notes